Saturday, September 27, 2008

Well, We made it thru, sorta???

Well this week is over, and we can breath a sigh of relief a little. All the prayers, and fasting did help and God came thru for our little A'jaye.
Her valve pressure number when we had her tested was at 98, normal is 20 so as you can see her number was way to high. It was no doubt that we had to go in and fix it, something that Aaron and I new that we would have to have done at some point we just were hoping that we could get her thru infancy before we needed to do this.
We took her to Primary Childrens along with Grandma Sandy, Grandma and Grandpa Lloyd & Grandpa Kurt along side with us, and all our other family back home praying for her. Aaron and I had a break down the night before surgery and held each other as we cried and let all our frustration and fear out. We had been so aunry all week and we finally let it out.... we didn't sleep at all and got up early to give her a blessing and head out all together. We arrived there at 10am check in time, and got called back right on time. She couldn't eat anything after 830 and I was so worried she'd be hungary but she did really good. She was so cute, with the nurses, and dr's and was just in a good mood, UNTIL..... the lab nurses came in, to take blood and do her IV. I was so angry at this point because they told me from the beginning they wouldn't stick her IV in until after she was asleep so when they came in to take her blood they thought they might as well do it then, I WAS MAD! but Aaron kept me calm so I didn't knock a nurse out. This broke my heart.... it took them awhile and alot of tears to get it in, and she wasn't happy. Every dr that came in to see her she would show them her IV, and tell them off...it was hilarious. So then it came time to take her down to the surgery room. This is what I dreaded from day one. We met all the team, and they showed us throughly what would happen and what they would do. Then I had to say good bye. She went right to the nurse and waved bye bye to me, and I sobbed all the way back up to the waiting room. We were both so scared. They told us it would take 2hours and they would page us when she was done, or if anything happened.
We decided with our family we would go grab a bite to eat so we headed to the cafateria. We all got lunch and just as we were finishing up the pager went off. It had only been a half hour. Aaron and I dropped what we were doing and ran. We didn't know what was going on. We knew her numbers were bad so we new they couldn't be done. I told myself as I took the elevator down to the surgery room that if I seen nurses and dr's running around I would flip but until I seen there was chaoes I would keep calm.
We walked nervously up to the doors and rang the bell....out came her nurse, she made eye contact with us so we new it wasn't bad. She smiled and said..."Good news, her pressure number is back down to a high normal (40) so they didn't go in and do anything" My heart calmed back down, and Aaron sighed a big relief. The Dr came out and just smiled and said, we aren't doing a thing. She looks good and its more risky to go in then it is to leave it alone for now."
Part of me was happy, and relieved and the other half was saying....MAN, so do we have to go thru this again in 2months, JUST FIX IT!
But I know that its a very risky procedure on such a small baby and the older she is the better chance it has to work. I just hate to see her go thru this. They wheeled her out, and I looked at her as she went by me... she looked so calm, and angelic laying there. I touched her face as they wheeled her by, but couldn't go with her just yet cuz the dr was still talking to us. He looked at me and smiled and said, "dont worry mom, they will take good care of her"
He then took us up to the recovery room where she would wake up. Aaron and I walked in to this room and there were all these kids, some sick, some hurt and parents holding their hands. I thought to myself "I AM BLESSED, my baby is fine, and things could be far worse" I waited for her to wake up, while Aaron went out to explain what was going on to our parents. She woke up and looked at me and wanted me to hold her. She looked down at the dang IV and cussed me again for it still being there. It didn't take her long to recover and shake off the medicine they'd given her and we were on our way in less then a hour for home.
I was holding her as we walked out of there, and all around us was kids and parents you could tell some were just so sick and I looked back and my family behind us, and just felt this overwhelming love and thought to myself, "at least my baby is coming home with me, we are leaving happy"
I know that she still will have to go thru some tuff things, and Aaron and I will have to be there going thru it with her hoping that we could just do it for her, but we know that her condition is fixable and very manageable so for that I feel blessed.
A'jaye has such a special spirit about her. Her smile lights up the room, and you can't help but smile or laugh every time she grins at you with her two single teeth and her eyes lit up. She was sent to us for some reason to be apart of our lives, and our family, maybe to teach us patience and faith, ..... maybe to teach us to be more appreciative of life and our blessings. Whatever the reason she was sent to us to raise and love we are so thankful for her and the light she brings to our family. She feels our life with love, and happiness just as all our other girls do.
Aaron and I are very blessed parents......
Thank you to all our family that prayed, and fasted for A'jaye I know that prayers are answered and that God had a hand in delaying this surgery for A'jayes sake.
So for now we just monitor her, and hope that she can wait till she is older to do anything else.

2 comments:

Delbert said...

you made me cry. I love you all so much. The Lord has blessed us all. Love, DAD

Peterson5 said...

I have just sat here and cried for you. I am glad you got good news and some more time to get her older. I will still keep you in my prayers and just know that I am always thinking about you.
maradee